Standing Ovation!

“At first they thought it was anxiety,” Melissa Thomason began her deeply moving and inspirational story.  Melissa’s first pregnancy was complicated by preeclampsia, requiring delivery 5 weeks early by C-section. Her elation was short-lived when she experienced “a bulldozer sitting on her chest and shortness of breath” two hours after her Cesarean delivery. She was told that anxiety is frequent after child birth.

“Thankfully, my OB listened to me and ordered a CT scan of my chest.” A nightmare: The severe pressure, pain and shortness of breath were caused by eminently life-threatening dissection of her thoracic aorta. Melissa was taken to a regional medical center where she underwent emergency repair of her aorta. Melissa expressed profound gratitude for the skillful surgeon and caring team that brought her back to health. When she was discharged and on her way home, reunited with her newborn son and husband, “The sky looked bluer and the air smelled sweeter.”

The nightmare recurs, even more pernicious. Melissa is told by her primary care physician that she has a very rare genetic disorder, Loeys-Dietz syndrome, that accounted for her aortic dissection and would now require a complete rebuilding of her entire aorta. “If you think having your chest cracked open is bad, try having your entire chest and flank opened, with 108 staples needed to close the wound,” she said good-naturedly.

Fast forward three-plus years. Melissa spoke with great sincerity, humor and resonance to several hundred clinical leaders and health care administrative executives at the Patient Centered Primary Care Collaborative Fall Conference. She inspired us and reinforced vital lessons on the criticality of building trust between patients and their families and their health care teams. Melissa spoke convincingly of the improvements in health care delivery and patient outcomes that may be achieved by actively involving patient advisers and patient councils to offer feedback, be involved in quality improvement initiatives and, thereby, positively transform health care. We gave her a well-deserved standing ovation.

 

Meetings

Customer Analytics & Engagement in Health Insurance Chicago December 4–5, 2014
Pharmaceutical and Biotech Clinical Quality Assurance Conference Alexandria, VA December 4–5, 2014
6th Semi-Annual Diagnostic Coverage and Reimbursement Conference Boston December 4–5, 2014
9th Semi-Annual Medical Device Coverage and Reimbursement Conference San Diego December 5, 2014
8th Annual Medical Device Clinical Trials Conference Chicago December 8–9, 2014
HealthIMPACT Southeast Tampa, FL January 23, 2015

Our other journal

P&T Journal for November 2014

FEATURES

LETTER TO THE EDITOR

Medications for Parkinson’s Disease

PERSPECTIVE

The Changing Roles of P&T Committees

Epilepsy Management: Newer Agents, Unmet Needs, and Future Treatment Strategies

PIPELINE PLUS

Modest Growth Seen in Epilepsy Market

MEETING HIGHLIGHTS

European Society of Cardiology and Transcatheter Cardiovascular Therapeutics

BOOK REVIEW

“Generic: The Unbranding of Modern Medicine,” by Jeremy A. Greene, MD, PhD

DEPARTMENTSMEDICATION ERRORS

Misadministration of IV Insulin Associated With Dose Measurement And Hyperkalemia Treatment

PRESCRIPTION: WASHINGTON

FDA’s Proposed 503B Draft Compounding Guidance Raises Concerns of All Kinds

New Drugs/Drug News

Pharmaceutical Approval Update

DRUG FORECAST

Riociguat (Adempas): a Novel Agent For the Treatment of Pulmonary Arterial Hypertension and Chronic Thromboembolic Pulmonary Hypertension


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